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NORD Partnership

Students for Rare clubs allow high school students to educate their peers and spread awareness of rare diseases throughout their school and campus. Our program unites students of all disciplines to use their skills to improve the lives of rare disease patients.

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Child Neurology Foundation

Serves as a collaborative center of education and support for children and their families living with neurologic conditions. SFR is partnered with this foundation in order to gain patients for the pediatric patient volunteer program.

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California Institute for Regenerative Medicine

This organization is dedicated to supporting all areas of stem cell research that show progress in accelerating treatment for patients in need.

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Muscular Dystrophy Association

This organization is dedicated toward fostering and promoting the alleviation of the conditions of persons with muscular dystrophy and related neuromuscular disorders through support of basic and applied research seeking the causes of and effective treatments for these diseases. SFR has collaborated in order to bring countless speakers from the MDA to share their knowledge and expertise with students

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NCATS NIH Office of Rare Disease Research

The mission of the NIH is to seek fundamental knowledge about the nature and behavior of the living systems and the application of that knowledge to enhance life, lengthen life, and reduce the burden of illness and disability. NCAT's goal in particular is to gain more treatments to patients.

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Global Genes

The mission of Global Genes is to connect, empower, and inspire the rare disease community. MSJ SFR has been able to network and connect with professionals to hold speaker presentations for the student body.

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University of California, Los Angeles

A public institution with a center dedicated towards rare disease research.  SFR has partnered with this university in order to network and provide our members with insightful guest speakers.

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CA Rare Action Network (NORD)

An organization standing for equitable access to timely diagnosis, treatment, and care for every person affected by rare diseases. It is a network connecting advocates to represent the rare disease community by developing key relationships with key decision makers and policy leaders.

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Guthy-Jackson Charitable Foundation

A foundation passionate in its support of programs and opportunities aimed at elevating the clinical paradigm for NMO patients and improving options for treatment, prevention, and an eventual care for those with Neuromyelitis Optica (NMO). SFR has partnered with this foundation to gain knowledge from numerous guest speakers and network with its staff.

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